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Family members can apply for funds needed to improve quality of life of someone with Angelman Syndrome
AngelmanUK is excited to announce a new partnership with the Angelman Syndrome Foundation. The ASF Family fund was created in 2019 to ease the financial burden of caring for someone with Angelman Syndrome in the USA. AngelmanUK is thrilled to be able to join forces with both the ASF and…
U.K. Angelman Trials
Latest news about the U.K. Angelman Trial. Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important. This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021.
Children’s activity pack now available
Keep the children amused while learning about Angelman Syndrome with these fun and educational activities. Download it here:
Face Masks and Emergency stickers now available
AngelmanUK Face Masks available are now in packs of 4, or as single masks from our Website shop. Unisex, 2 layer with filter pocket and nose wire, washable with adjustable elastic. Facemasks or non medical face coverings are now required in shops in England & Scotland as they already are…
Coronavirus information and useful links
We have put together this page to provide links to the most up to date information about coronavirus from official Government and NHS sources. We have also included useful links to groups and activities that you and your family may find helpful while you are at home over the coming…
The 2020 family conference has been cancelled
We are very sorry to announce that, due to the Coronavirus pandemic, this years family conference has been cancelled. We are working on ideas for a smaller event next year and we will be concentrating on our next family conference which will be held at the Hilton Hotel, Coventry 26-28…
Book now for your nearest International Angelman Day regional event
Book your place now! Details of your nearest meeting and how to book will be posted to you in January. If you have not received a letter download it here, or email Lisa Court for details.
Conference Talks
A collection of talks from the past AngelmanUK conferences were filmed to share with people who couldn’t join us on the day. These videos all based on the topic of communication and AAC. Thanks to the speakers for sharing their knowledge with us. All the films are by Molly Brown…
The communication conference was a great success once again.
It was fabulous to see so many people using AAC systems. Seeing people with Angelman Syndrome communicating in such a natural way was also very inspiring for those who are new to their communication journey. Friday – Professionals day We were honoured that Jane Farrall returned for our second conference and…
Is a cure for Angelman Syndrome possible?
If you are new to the diagnosis of Angelman Syndrome you will have no doubt come across the statement that a cure for Angelman Syndrome is possible. There is no disputing the fact that science has moved on incredibly quickly in recent years, thanks in no small part to the…
