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Who’s Who in Research?
Who’s who in Angelman Syndrome research? Here’s a chance to put faces to the names of some of the most prominent physicians in the field.
Get involved
Sometimes we ask families to be involved in research.
International research
Research projects currently taking place throughout the world: Ovid Therapeutics research is pioneering a scientific approach to develop therapies based on new understanding of key biological pathways and their central role in rare neurological disorders. Gabaxodal, renamed Ovid 101 for this purpose. Please see the website for further information and…
ASA
The Angelman Syndrome Alliance (ASA) supports research on Angelman syndrome with up to 350.000,- Euro to be awarded at the next International Angelman Syndrome Scientific Conference. The Angelman Syndrome Alliance is an initiative of the following parent organizations ASB (Belgium), ASFA (France), Angelman e.V. (Germany), ORSA (Italy), AIA (Ireland), AV…
UK research
Professor Chris Oliver Chris Oliver is Professor of Neurodevelopmental Disorders at the University of Birmingham and director of the Cerebra Centre for Neurodevelopmental Disorders. He trained as a clinical psychologist at Edinburgh University before completing a PhD on self-injurious behaviour in people with intellectual disability at the Institute of Psychiatry,…
Links
Useful websites Angelman Syndrome Websites Australia, Queensland: angelmansyndromeqld.org Australia, Western Australia: angelmanwa.com.au Angelman Biomarkers: angelmanbiomarkers.org Argentinia: casaangelman.org Austria: angelman.at Belgium: angelmansyndroom.be Canada: angelmancanada.org Denmark: angelmanforening.dk Finland: angelman.fi Germany: angelman.de Ireland: angelman.ie Israel: angelman.co.il Italy: sindromediangelman.org Mexico: facebook.com/sindromengelmanmex Norway: angelman.no Spain: angelman-asa.org Netherlands: angelmansyndroom.nl USA: angelman.org FAST: cureangelman.org Support BILD: bild.org.uk Challenging Behaviour Foundation: challengingbehaviour.org.uk Carers Trust: carers.org Carers…
Newsletters and Resources
Welcome to AngelmanUK’s Resources page. Here you’ll find downloadable resources and issues of our current and previous newsletters with articles on a number of different topics. A selection of useful websites can be found in our links section. Disabled children: a legal handbook is an authoritative yet accessible guide to the…
Equipment
Most individuals with Angelman Syndrome will need some specialist equipment, some more than others. Only time will tell what, if anything, your child will need and adopting a wait and see attitude, rather than trying to plan immediately after diagnosis for every future possibility for your child, will save you…
Benefits
Various benefits are available depending on the age and circumstances of the AS individual, these include: Disability Living Allowance (DLA) for children Disability Living Allowance (DLA) for adults Personal Independence Payment (PIP) Employment and Support Allowance (ESA) Carers Allowance Up to date advice can be obtained from www.gov.uk/browse/benefits/disability or your local…
Sibling support
AngelmanUK recognises that siblings play an important role but we also recognise that they also have their own needs. We have a dedicated sibling trustee who is themselves a sibling and who is happy to talk to people who are in a similar position about how they feel or the…
