Search results for:
Privacy Policy
In order to operate effectively and fulfil its legal obligations, AngelmanUK needs to collect, maintain and use certain personal data about current, past and prospective members, suppliers and other individuals that contact AngelmanUK, or with whom it has dealings (each, a “data subject” and together, “data subjects”). AngelmanUK is dedicated…
Contact us
If you would like more information about the work of AngelmanUK, or have any questions about Angelman Syndrome or comments that you would like to make, please contact us via any of the methods below. Notice: JavaScript is required for this content. Freepost Address AngelmanUK PO Box 4962 Nuneaton CV11…
Join us
If you would like to become a member of AngelmanUK please register with us using the form below. If you need to speak to someone, please call our telephone support line 0300 999 0102. Notice: JavaScript is required for this content.
Events
Every other year we run a national conference which enables families and carers as well as professionals the chance to meet together. The conference is a mix of social time, sharing experiences with each other, enjoying some fun relaxing time where Angelman Syndrome is totally accepted as well as some…
Who’s Who?
AngelmanUK is a United Kingdom-based support group. The trustees are all volunteers with direct experience of Angelman Syndrome either as parents or relatives of children or adults with AS. We also have a panel of experts who are able to answer and advise on more complex questions. Many of these…
What equipment is available?
There are a vast array of products available to help you and the person with Angelman Syndrome. From the basics of specially designed forks and spoons, to high tech wheelchairs, hoists and safe, secure beds. Monitors to measure oxygen levels, observe seizure activity. Communication aids, special toothbrushes, personal care equipment.…
What funding is available?
Unfortunately, none of the specialist equipment comes cheap as it takes years to develop products and the demand may never be high. There are several ways you can fund specific items or projects: a. Gifts for people with AS, eg for birthdays or Christmas, can be difficult. Ask instead for…
Other ways to donate
Not everybody wants to run a marathon or cycle to the moon to raise money for us, people have found lots of other fun and clever ways of raising funds for AngelmanUK. Cake sales, sky dives, car washing, sponsored walks, quiz nights, sponsored silence, rugby/football matches… the list is as…
Fundraising
AngelmanUK relies on your fundraising and donations in order to support and educate those who are affected by Angelman Syndrome. Therefore our army of fundraisers are very important to us. Every penny really does make a difference; so if you are thinking of raising some funds for us, please get…
