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AngelmanUK 25th Anniversary Ball
My experience of Angelman meet-ups usually involves snatching a couple of sentences with another parent or carer in passing, before having to dash off and rescue Woody from whatever chaos he is currently causing. This usually happens whilst I am covered in his dribble, the remains of his last meal…
Working and caring for a person with AS
For young AS children, mainstream nurseries are generally very good. At the pre-school age there is little gap between a child with AS and any other child, any additional needs are easily met and the existing equipment available in the nursery can be adapted. Difficulties finding adequate childcare may arise…
What respite options are there?
This largely depends on where you live and what your council has to offer. In the first place, contact your local council and ask for an assessment with a social worker. Social Workers usually visit you at home, both with and without your children, to assess your level of need.…
Will my child need to go to a specialist school?
Whilst the majority of children with Angelman Syndrome do go to specialist schools, it is possible, with the right support, for your child to go fully to a mainstream school or to do split placements. There are pros and cons for both. Attending a local mainstream school may mean greater…
How can I improve sleep?
See also the page on sleep. By far, one of the things parents, carers and the wider family struggle with the most is the issue of sleep, or lack of it. Unfortunately, the bottom line is that most (although not all) individuals with AS just need less sleep than their…
Will I have another child with AS?
For most people, the chances of having another baby with AS are the same as any other person – approx. 1:15,000 – 1:20,000. If your child has the Ube3a mutation form of Angelman syndrome, there is a much higher chance that you will have another child with AS – approx.…
What equipment do I need?
Most individuals with Angelman syndrome will need some specialist equipment, some more than others. Only time will tell what, if anything, your child will need and adopting a wait and see attitude, rather than trying to plan immediately after diagnosis for every future possibility for your child, will save you…
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Glossary
Terms used in research Chromosome Long string of genes are arranged into 46 chromosomes – 22 pairs (numbered 1-22) and two sex chromosomes (XX for females and XY for males) in every cell in the human body. One chromosome from each pair comes from the mother and one from the…
