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We’re going to the zoo, how about you?

Join us over the Easter weekend Angelman UK is very happy to announce that our regional events are back and we’re off to the zoo! We know our families have missed our regular regional events and we all love meeting up with each other don’t we? Thank you to our…

Communication Conference

27-29th October 2023 at the Hilton Hotel, Coventry     Day 1, for Professionals: AAC implementation is a journey. Stepping Into AAC is a compilation of resources to support that journey that incorporates: 1) actionable AAC practice 2) videos that guide one through a range of…

Fabulous fundraisers

London Marathon – once again our London marathon runners did an amazing job of raising over £16,899 for AngelmanUK as well as raising awareness in their families and local communities. The Enthuse London Marathon is one of our biggest fundraisers and we are eternally grateful for their magnificent efforts. Considering…

Press release

           Contact: Amanda Moore, Angelman Syndrome Foundation or Rachel Martin, Angelman UK Date: 21st September 2022 AngelmanUK and the Angelman Syndrome Foundation (ASF) partner to launch new clinics for families in the UK The Angelman Syndrome Foundation is proud…

Book Now for our Family Conference 26-28 August 2022

Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry. For more information go to our Events page.

Natural History Study and Clinical Trials Progress

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK.  …

Response to the Down Syndrome Bill

The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome…

Family members can apply for funds needed to improve quality of life of someone with Angelman Syndrome

The ASF Family Fund was created to provide financial assistance to families supporting individuals with Angelman syndrome.

U.K. Angelman Trials

Latest news about the U.K. Angelman Trial. Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important.  This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021.

Children’s activity pack now available

Keep the children amused while learning about Angelman Syndrome with these fun and educational activities. Download it here:…

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