News

As you know, the Coronavirus pandemic has caused chaos throughout the world. We are all aware of the restrictions imposed on us as families in order to try to keep ourselves and our loved ones safe and those restrictions mean that large social gatherings are not permitted. Therefore it is with great sadness that we confirm that the AngelmanUK will not be going ahead this year.

We appreciate that many of you will be disappointed but we feel that it would be irresponsible to go ahead with the event knowing how difficult it would be to impose social distancing measures. We can’t have a conference without the hugs and headlocks we know so well! We are sure that you will agree that whilst disappointing, it is the right decision for everyone.

We are working on a few ideas for a smaller event next year and we will be cocentrating our efforts on making our family conference in 2022 better than ever!

Save that date – Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry

Also look out for a written invitation to regional events during February 2021 to celebrate International Angelman Day.

Keep an eye out for updates on our social media platforms!

Natural History Study and Clinical Trials Progress

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK. …

Response to the Down Syndrome Bill

The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome…

Family members can apply for funds needed to improve quality of life of someone with Angelman Syndrome

The ASF Family Fund was created to provide financial assistance to families supporting individuals with Angelman syndrome.

U.K. Angelman Trials

Latest news about the U.K. Angelman Trial. Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important. This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021.

Children’s activity pack now available

Keep the children amused while learning about Angelman Syndrome with these fun and educational activities. Download it here:…

Face Masks and Emergency stickers now available

AngelmanUK Face Masks available are now in packs of 4, or as single masks from our Website shop. Unisex, 2 layer with filter pocket and nose wire, washable with adjustable elastic. Facemasks or non medical face coverings are now required in shops in England & Scotland as they already…

Coronavirus information and useful links

We have put together this page to provide links to the most up to date information about coronavirus from official Government and NHS sources. We have also included useful links to groups and activities that you and your family may find helpful while you are at home over the coming weeks.

This years family conference has been cancelled

We are very sorry to announce that, due to the Coronavirus pandemic, this years family conference has been cancelled. We are working on ideas for a smaller event next year and we will be concentrating on our next family conference which will be held at the Hilton Hotel, Coventry 26-28…

Book now for your nearest International Angelman Day regional event

Book your place now! Details of your nearest meeting and how to book will be posted to you in January. If you have not received a letter download it here, or email Lisa Court for details.

The communication conference was a great success once again.

Communication at all levels is one of the biggest issues for our families. Our second Communication Conference took place in October 2019 and was a great success.