News

Carers Week 9th to 15th June 2025

One parent’s account of caring: Read with a grain of salt The Triggers and The Blink A story of rage, restraint, and falling flat on your face in front of kids with crutches It had been a rough few days. Yes—this is right after those three magical days…

DLA and PIP Guidance

Read our guide to the language used in DLA and PIP assessment.

IAD 2024

On the 15th of February we will be celebrating the 11th year of International Angelman Day. You can join us in raising awareness for Angelman Syndrome by using the template below to request your local authorities to light the buildings and landmarks in blue. Hello I am…

Family weekend & ASA scientific conference

Will be held at the DoubleTree by Hilton Coventry on the 2nd-4th of August 2024. Venue address: DoubleTree by Hilton Coventry, Paradise Way, Walsgrave on Sowe, Coventry, CV2 2ST View the Family Conference Programme 2024 Saturday is an adult only day filled with sessions on…

Wills, Trusts & Lasting Power of Attorney

As a parent of a child with a disability, it’s important to plan for their future in the event that something happens to you. While it may be difficult to think about, making these plans now can help ensure that your children are taken care of and gives you…

Fabulous fundraisers

London Marathon – once again our London marathon runners did an amazing job of raising over £16,899 for AngelmanUK as well as raising awareness in their families and local communities. The Enthuse London Marathon is one of our biggest fundraisers and we are eternally grateful for their magnificent efforts. Considering…

Press release

Contact: Amanda Moore, Angelman Syndrome Foundation or Rachel Martin, Angelman UK Date: 21st September 2022 AngelmanUK and the Angelman Syndrome Foundation (ASF) partner to launch new clinics for families in the UK The Angelman Syndrome Foundation is proud…

Book Now for our Family Conference 26-28 August 2022

Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry. For more information go to our Events page.

Natural History Study and Clinical Trials Progress

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK. …

Response to the Down Syndrome Bill

The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome…