News - Angelman Syndrome - Angelman Syndrome

Press release

Contact: Amanda Moore, Angelman Syndrome Foundation or Rachel Martin, Angelman UK Date: 21st September 2022 AngelmanUK and the Angelman Syndrome Foundation (ASF) partner to launch new clinics for families in the UK The Angelman Syndrome Foundation is proud…

Book Now for our Family Conference 26-28 August 2022

Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry. For more information go to our Events page.

Natural History Study and Clinical Trials Progress

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK. …

Response to the Down Syndrome Bill

The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome…

Family members can apply for funds needed to improve quality of life of someone with Angelman Syndrome

The ASF Family Fund was created to provide financial assistance to families supporting individuals with Angelman syndrome.

U.K. Angelman Trials

Latest news about the U.K. Angelman Trial. Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important. This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021.

Children’s activity pack now available

Keep the children amused while learning about Angelman Syndrome with these fun and educational activities. Download it here:…

Face Masks and Emergency stickers now available

AngelmanUK Face Masks available are now in packs of 4, or as single masks from our Website shop. Unisex, 2 layer with filter pocket and nose wire, washable with adjustable elastic. Facemasks or non medical face coverings are now required in shops in England & Scotland as they already…

Coronavirus information and useful links

We have put together this page to provide links to the most up to date information about coronavirus from official Government and NHS sources. We have also included useful links to groups and activities that you and your family may find helpful while you are at home over the coming weeks.

The 2020 family conference has been cancelled

We are very sorry to announce that, due to the Coronavirus pandemic, this years family conference has been cancelled. We are working on ideas for a smaller event next year and we will be concentrating on our next family conference which will be held at the Hilton Hotel, Coventry 26-28…