A group of three motorcycling friends are set to ride from Ashford to Mount Etna in Sicily and back to raise money for AngelmanUK. Starting on May 18 at Jack Lilley Triumph in Ashford and ending on June 2 at Burview Hall in Walton-on-Thames, ‘The Angelman Rally’ was created by 38-year-old Xavier Lomas after his two-year-old son Henri was diagnosed with the condition.
Our next family conference will be 28-30 August 2020 Hilton Hotel, Coventry. As well as 2018 being our 25th anniversary, it was also family conference year! Everyone looks forward to our family conference including the trustee’s, all of whom work extra hard to make the weekend a success. The conference was held once again at The Hilton Hotel, Coventry on 10-12 August 2018. We have an excellent relationship with the hotel staff and they tell us that they look forward to us coming every time!
My experience of Angelman meet-ups usually involves snatching a couple of sentences with another parent or carer in passing, before having to dash off and rescue Woody from whatever chaos he is currently causing. This usually happens whilst I am covered in his dribble, the remains of his last meal and sporting a hairstyle that can only be achieved by having your hair grabbed and stuffed in his mouth while he has you in a full headlock.