News

U.K. Angelman Trials

Latest news about the U.K. Angelman Trial. Professor Laurent Servais, MD, PhD Professor of Paediatric Neuromuscular Diseases at the University of Oxford, explains in more detail what is involved and why the trial is important. This presentation was recently heard during the collaborative AngelmanUK/FAST U.K. webinar on 02 July 2021.

Children’s activity pack now available

Keep the children amused while learning about Angelman Syndrome with these fun and educational activities. Download it here:…

Face Masks and Emergency stickers now available

AngelmanUK Face Masks available are now in packs of 4, or as single masks from our Website shop. Unisex, 2 layer with filter pocket and nose wire, washable with adjustable elastic. Facemasks or non medical face coverings are now required in shops in England & Scotland as they already…

Coronavirus information and useful links

We have put together this page to provide links to the most up to date information about coronavirus from official Government and NHS sources. We have also included useful links to groups and activities that you and your family may find helpful while you are at home over the coming weeks.

The 2020 family conference has been cancelled

We are very sorry to announce that, due to the Coronavirus pandemic, this years family conference has been cancelled. We are working on ideas for a smaller event next year and we will be concentrating on our next family conference which will be held at the Hilton Hotel, Coventry 26-28…

Book now for your nearest International Angelman Day regional event

Book your place now! Details of your nearest meeting and how to book will be posted to you in January. If you have not received a letter download it here, or email Lisa Court for details.

The communication conference was a great success once again.

Communication at all levels is one of the biggest issues for our families. Our second Communication Conference took place in October 2019 and was a great success.

Charity Film Awards 2019

The awards were presented by the lovely Sally Phillips at the Charity Film Awards 2019 Ceremony on Friday 26 April at the brand new etc.venues Liverpool Street, London.

Riding trio to take on 3315 mile trip for charity

A group of three motorcycling friends are set to ride from Ashford to Mount Etna in Sicily and back to raise money for AngelmanUK. Starting on May 18 at Jack Lilley Triumph in Ashford and ending on June 2 at Burview Hall in Walton-on-Thames, ‘The Angelman Rally’ was created by 38-year-old Xavier Lomas after his two-year-old son Henri was diagnosed with the condition.

Family Conference

Our next family conference will be 28-30 August 2020 Hilton Hotel, Coventry. As well as 2018 being our 25th anniversary, it was also family conference year! Everyone looks forward to our family conference including the trustee’s, all of whom work extra hard to make the weekend a success. The conference was held once again at The Hilton Hotel, Coventry on 10-12 August 2018. We have an excellent relationship with the hotel staff and they tell us that they look forward to us coming every time!