News

As you know, the Coronavirus pandemic has caused chaos throughout the world. We are all aware of the restrictions imposed on us as families in order to try to keep ourselves and our loved ones safe and those restrictions mean that large social gatherings are not permitted. Therefore it is with great sadness that we confirm that the AngelmanUK will not be going ahead this year.

We appreciate that many of you will be disappointed but we feel that it would be irresponsible to go ahead with the event knowing how difficult it would be to impose social distancing measures. We can’t have a conference without the hugs and headlocks we know so well! We are sure that you will agree that whilst disappointing, it is the right decision for everyone.

We are working on a few ideas for a smaller event next year and we will be cocentrating our efforts on making our family conference in 2022 better than ever!

Save that date – Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry

Also look out for a written invitation to regional events during February 2021 to celebrate International Angelman Day.

Keep an eye out for updates on our social media platforms!

Charity Film Awards 2019

The awards were presented by the lovely Sally Phillips at the Charity Film Awards 2019 Ceremony on Friday 26 April at the brand new etc.venues Liverpool Street, London.

Riding trio to take on 3315 mile trip for charity

A group of three motorcycling friends are set to ride from Ashford to Mount Etna in Sicily and back to raise money for AngelmanUK. Starting on May 18 at Jack Lilley Triumph in Ashford and ending on June 2 at Burview Hall in Walton-on-Thames, ‘The Angelman Rally’ was created by 38-year-old Xavier Lomas after his two-year-old son Henri was diagnosed with the condition.

Family Conference

Our next family conference will be 28-30 August 2020 Hilton Hotel, Coventry. As well as 2018 being our 25th anniversary, it was also family conference year! Everyone looks forward to our family conference including the trustee’s, all of whom work extra hard to make the weekend a success. The conference was held once again at The Hilton Hotel, Coventry on 10-12 August 2018. We have an excellent relationship with the hotel staff and they tell us that they look forward to us coming every time!

Communication Conference

Book online now: 11-13th October 2019 at the Hilton Hotel, Coventry

AngelmanUK 25th Anniversary Ball

My experience of Angelman meet-ups usually involves snatching a couple of sentences with another parent or carer in passing, before having to dash off and rescue Woody from whatever chaos he is currently causing. This usually happens whilst I am covered in his dribble, the remains of his last meal and sporting a hairstyle that can only be achieved by having your hair grabbed and stuffed in his mouth while he has you in a full headlock.

Angelman Syndrome Alliance News

For those of you who are new to AngelmanUK the ASA is a collaborative project between international charities to fund scientific research into Angelman Syndrome. Both projects are nearing completion and we hope to launch our next grant call before the end of the year.