Author Archives: Sian Allen

Fabulous fundraisers

London Marathon – once again our London marathon runners did an amazing job of raising over £16,899 for AngelmanUK as well as raising awareness in their families and local communities. The Enthuse London Marathon is one of our biggest fundraisers and we are eternally grateful for their magnificent efforts. Considering…

Press release

           Contact: Amanda Moore, Angelman Syndrome Foundation or Rachel Martin, Angelman UK Date: 21st September 2022 AngelmanUK and the Angelman Syndrome Foundation (ASF) partner to launch new clinics for families in the UK The Angelman Syndrome Foundation is proud…

Natural History Study and Clinical Trials Progress

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK.  …

Response to the Down Syndrome Bill

The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome…