Welcome to the website for Assert, the Angelman Syndrome Support Education & Research Trust. We are a UK based charity whose primary aims are:
Support – supporting families and carers of people with Angelman Syndrome. Also providing support to professionals who meet AS individuals, even though they may meet very few individuals with Angelman Syndrome in their professional career.
Education – providing education and raising awareness of this rare neurological condition and the issues that surround it. As with many such conditions, Angelman Syndrome is not just about a simple diagnosis, but requires parents and carers to adapt as situations change and the individual grows older. We aim to provide information and advice for all ages, drawing on the vast knowledge of the trustees and our experts panel, some of whom are world renowned experts in Angelman Syndrome.
Research – assisting organisations and individuals in carrying out research into Angelman Syndrome and its many related areas. Much of this research has already provided great benefit to families and carers.
The aim of this website is to be a source of information for you, opening the doors on the world of Angelman Syndrome. There is a wide variety of information on these pages and much of it will be regularly updated so do check back regularly.
If you would like to become a member of Assert please contact us either via email email@example.com or on our telephone support line: 0300 999 0102.
80 percent of UK people with rare syndrome still to be found. More than eight out of ten people in the UK with a rare genetic condition could be missing out on crucial support because of a lack of a diagnosis.
We are very pleased to announce that the ASSERT conference in 2014 will be held at the Hilton Hotel in Coventry on Friday 29th August – Sunday 31st August
We had a huge response for our golden bond places this year, the most we have ever had. So I am very pleased to announce our lucky runners Read more...
Researchers at the University of Birmingham are starting two new research projects with families. 'What makes services stand up and listen? Facts go a long way but can they ever match up to people’s stories about their experiences – stories about their children’s needs, parents’ perceptions of these needs and the services they may go on to access? We feel that these stories are powerful and that they can make a real difference'. Read more...