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    Your continued support has helped us to raise over £250k this year

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    Come and meet us at our next family conference  01-04 August 2024

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    useful information

You’re one in a million! Well, if you’re affected by Angelman Syndrome you’re more like one in twenty thousand – but you’re in good company. Whether you’re directly affected by AS, would just like to know more about it, or would like to help raise funds we’re here to support you. And make your life easier.

Fundraising

Get involved! This is how you, your families and friends can help us to help you.

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Gift ideas that will also raise money for us: a win-win situation!

News

DLA and PIP Guidance

  🛑 DLA ▪️https://www.gov.uk/disability-living-allowance-children/how-to-claim ▪️https://contact.org.uk/help-for-families/information-advice-services/benefits-financial-help/disability-living-allowance/tips-on-completing-the-dla-form/ ▪️https://cerebra.org.uk/wp-content/uploads/2023/05/DLA-guide-2023.pdf ▪️https://www.familiesinfocusessex.org.uk/wp-content/uploads/2023/01/DLA-helpful-phrases.pdf ▪️https://www.scope.org.uk/advice-and-support/disability-living-allowance-dla ▪️https://www.disabilityrightsuk.org/resources/disability-living-allowance-dla 🛑 PIP ▪️https://www.gov.uk/pip/how-to-claim ▪️https://www.scope.org.uk/advice-and-support/tips-for-completing-pip-form?gad_source=1 ▪️https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/how-to-claim/ ▪️https://www.familiesinfocusessex.org.uk/wp-content/uploads/2023/01/PIP-helpful-phrases.pdf ▪️https://www.citizensadvice.org.uk/Global/Migrated_Documents/adviceguide/pip-9-table-of-activities-descriptors-and-points.pdf 🛑 A guide to language used in the PIP assessment. (Also useful for DLA forms!) In particular the law section on p5 which gives the definition of ‘unaided’…

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