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Social media badges
If you are taking part in a sporting event, why not download our social media badges and share them to help raise awareness of Angelman Syndrome and your fantastic fundraising efforts! Don’t forget to tag @angelmanuk in any posts to make sure we see them too.
IAD 2024
On the 15th of February we will be celebrating the 11th year of International Angelman Day. You can join us in raising awareness for Angelman Syndrome by using the template below to request your local authorities to light the buildings and landmarks in blue. Hello I am writing to…
Family weekend & ASA scientific conference
Will be held at the DoubleTree by Hilton Coventry on the 2nd-4th of August 2024. Venue address: DoubleTree by Hilton Coventry, Paradise Way, Walsgrave on Sowe, Coventry, CV2 2ST More details to follow soon.
Wills, Trusts & Lasting Power of Attorney
As a parent of a child with a disability, it’s important to plan for their future in the event that something happens to you. While it may be difficult to think about, making these plans now can help ensure that your children are taken care of and gives you peace…
Communication Conference
27-29th October 2023 at the Hilton Hotel, Coventry Day 1, for Professionals: AAC implementation is a journey. Stepping Into AAC is a compilation of resources to support that journey that incorporates: 1) actionable AAC practice 2) videos that guide one through a range of AAC topics 3) a…
Fabulous fundraisers
London Marathon – once again our London marathon runners did an amazing job of raising over £16,899 for AngelmanUK as well as raising awareness in their families and local communities. The Enthuse London Marathon is one of our biggest fundraisers and we are eternally grateful for their magnificent efforts. Considering…
Press release
Contact: Amanda Moore, Angelman Syndrome Foundation or Rachel Martin, Angelman UK Date: 21st September 2022 AngelmanUK and the Angelman Syndrome Foundation (ASF) partner to launch new clinics for families in the UK The Angelman Syndrome Foundation is proud to announce their partnerships with AngelmanUK to…
Book Now for our Family Conference 26-28 August 2022
Family Conference 26-28 August 2022 Doubletree by Hilton Hotel, Coventry. For more information go to our Events page.
Natural History Study and Clinical Trials Progress
University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from us and FAST UK.
Response to the Down Syndrome Bill
The Down Syndrome Bill recently received its second reading in the House of Commons. This is a Private Members’ Bill introduced by Conservative MP Dr Liam Fox which aims to ensure that certain health, education, and local authorities take account of the specific needs of people with Down’s syndrome when…
